Leadership In Action Partners

MARYLAND CITIZENS HEALTH INITIATIVE (MCHI) 

State Advocate: Suzanne Schlattman, Deputy Director for Development
Senior Leader:  Barry Ensminger

The Maryland Citizens' Health Initiative Education Fund, Inc. is mobilizing a diverse coalition of stakeholders to preserve coverage gains made in recent years under the Affordable Care Act and Medicaid as well as expanding the Maryland Faith Health Network to more fully engage consumers in health system transformation. The Network uses lay faith leaders to support fellow congregants’ needs during hospitalizations and post-discharge.

http://healthcareforall.com/

MAKE THE ROAD NEW YORK (MRNY)

State Advocate: Becca Telzak, Director of Health Programs
Senior Leader: Barry Ensminger

Make the Road New York's CVI project goals are to enhance community member engagement to better understand the delivery system changes happening to Health + Hospitals (New York City’s public hospital system) and to the One City Health (OCH) PPS (Performing Provider System). They strive to improve OCH PPS's infrastructure and funding to allow for community member engagement and Community Based Organization (CBO) involvement in the PPS, as well as increase programmatic funding for CBOs. MRNY works to increase involvement of Community Health Workers in the OCH PPS while advocating for the importance of the Affordable Care Act (ACA) and a robust Medicaid program.

MRNY is working to achieve these goals by educating community members, organizing Community Health Workers, obtaining earned media, enhancing their relationship with the OCH PPS and collaborating with coalition partners and ally organizations. MRNY will also partner with key elected officials to protect the ACA and maintain a robust Medicaid program. 

https://maketheroadny.org/

OREGON STATE PUBLIC INTEREST RESEARCH GROUP (OSPIRG)

State Advocate: Rebecca Pearson (Unite Oregon), Health Equity Organizer
Senior Leader: Marie Monrad

Through a comprehensive effort to transform the way health care is paid for and delivered in the state Medicaid program, Oregon has become a leader in health policy innovation aimed at containing costs, improving quality and improving community health. With its partners, Unite Oregon and the Oregon Latino Health Coalition, OSPIRG is collaborating on a targeted grassroots organizing campaign to enhance consumer engagement with the state’s delivery reform efforts at the local level in a strategically targeted region of the state--Southern Oregon. OSPIRG seeks to improve meaningful consumer engagement in delivery reform structures in that region of the state and establish "proof of concept" for a broader statewide organizing effort. OSPIRG will also collaborate on a range of advocacy activities aimed at strengthening transparency and accountability for health systems participating in the state's Medicaid transformation program.

https://ospirg.org/home

PENNSYLVANIA HEALTH ACTION NETWORK (PHAN)

State Advocate: Erin Ninehouser, Consumer Engagement Manager
Senior Leaders: Judy Feder and Barbara Riley

Pennsylvania is moving rapidly toward requiring Medicaid and dual eligible Medicare recipients needing long-term services and supports to enroll in managed care. The implementation and rollout of the new Community HealthChoices (CHC) program will impact approximately 420,613 individuals. Of those, 60% are individuals over 60 years old. PHAN’s goal is to ensure that there is robust consumer engagement in this process. PHAN will identify and build capacity among eligible individuals and organizations to engage and protect consumers in the transition to CHC. At the same time, PHAN will continue to mobilize these and other constituencies to protect Medicaid emphasizing the importance of a strong Medicaid program to Pennsylvania’s health system transformation efforts.

https://pahealthaccess.org/

RHODE ISLAND ORGANIZING PROJECT (RIOP) 

State Advocate: Ray Gagne, Executive Director
Senior Leaders: Judy Feder and Barbara Riley

Rhode Island Organizing Project’s CVI project is a joint initiative led by RIOP in collaboration with the Economic Progress Institute and the Senior Agenda Coalition. The goal of the project is to organize seniors and people with disabilities to speak up about the quality of their health under a new state program called the Integrated Care Initiative (ICI). The ICI offers a new managed care option for persons who are eligible for both Medicaid and Medicare. The project will also organize to insure that seniors and people with disabilities have access to services that affect their health such as transportation, food and housing. The project will also engage in efforts to defend the ACA and Medicaid from changes that will limit innovation and reduce insurance access, affordability and quality of care.

https://twitter.com/riop_ri

NORTH CAROLINA JUSTICE CENTER (NCJC)

State Advocate: Brendan Riley, Policy Analyst, Health Advocacy Project
Senior Leader: Mary Kennedy

The North Carolina Justice Center is a research and advocacy organization that seeks to eliminate poverty in North Carolina by ensuring that every household has access to the services, resources, and fair treatment it needs to achieve economic security. Through their Health Advocacy Project (HAP), NCJC works towards ensuring access to high quality and affordable health care, especially for underserved populations, such as racial and ethnic minorities, those in rural communities and those with low incomes. Its goal is to secure health care policies that prioritize consumer needs and well-being.

There are major changes underway for key health programs (Medicaid and CHIP) in North Carolina. With this project, NCJC’s goal is to improve access to quality and timely care, while also eliminating the coverage gap, in order to produce measurable health outcomes that will reward smart investments and advance health equity. NCJC will mobilize and educate a network of consumers through communications, grassroots engagement and partnerships to build a sustainable consumer-led infrastructure in order to shape Medicaid transformation. They also aim to develop a data collection, monitoring and reporting system to track and identify progress and barriers to Medicaid reform. Finally, they will develop and pursue a policy and regulatory agenda to improve healthcare value and health equity while minimizing disruption and reducing barriers to access.

http://www.ncjustice.org/

TENNESSEE DISABILITY COALITION (TDC)

State Advocate: Tonya Bowman, Team Leader/Statewide Family Resource Specialist 
Senior Leader: Jeffrey Keilson

The Tennessee Disability Coalition is an alliance of organizations and individuals working together to affect system change on behalf of individuals with disabilities as well as their families. Its member organizations and community members represent Tennesseans of every age, economic background, political persuasion and disability.

In 2016, the state implemented an 1115 waiver amendment to consolidate its program of Medicaid home- and community-based services (HCBS) into the state’s capitated Medicaid program, TennCare. Through the integration of long-term services and supports (LTSS) and medical services and the realignment of financial incentives, the capitation of intellectual disability/developmental disability (ID/DD) services is meant to significantly improve the quality, efficiency and reach of services for this highly vulnerable, underserved population. However, this will not be successful unless the plans in the program understand the needs of people with ID/DD and how to meet them. In their project, TDC will organize and implement family- and consumer-based advocacy to shape policies and practices in Tennessee’s system of LTSS for people with ID/DD. The project’s goals are to provide training and support for family and consumer leaders serving on managed care organizations (MCOs) and TennCare advisory councils and engaging in grassroots organizing of consumers and families. TDC will also conduct policy analysis and direct advocacy efforts at systems change.        

www.tndisability.org